Tuesday 28th March 2017
Today, MPs will meet in Parliament to debate the implementation of the UK Strategy for Rare Diseases in England. This is a unique opportunity for us to raise awareness of the problems facing patients and families affected by rare conditions in accessing a timely diagnosis, coordinated care and appropriate treatment.
Friday 24th March 2017
In spring last year SRUK awarded its first research grants, following on from the work of the Raynaud’s and Scleroderma Association and Scleroderma Society, which had been supporting research into both conditions in this way since the 1980s.
Tuesday 21st March 2017
Tuesday 7th March 2017
The Prescription Charges Coalition has launched a survey looking at the ways in which prescription charges affect the lives of people in England with long-term conditions such as Scleroderma and Raynaud’s.
Tuesday 28th February 2017
Wednesday 22nd February 2017
Wednesday 8th February 2017
How to look after yourself when running.
Monday 9th January 2017
February 2017 was Raynaud's Awareness Month and SRUK supported it with raise your hands.
Tuesday 3rd January 2017
Dan Muscat, 49, developed systemic scleroderma in 2014, in which the skin all over his body began to harden and tighten due to the overproduction of collagen. An experimental stem-cell treatment has meant a "180-degree" turn in Dan's symptoms.
Tuesday 3rd January 2017
Raynaud’s attacks, usually triggered by the cold causing a lack of blood flow to the extremities, are often mild and manageable; however diving into cold water may cause problems.
