Suzie's Raynaud's Story
Paramedic Suzie didn't know she had Raynaud's until a colleague mentioned the possibility.
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We are incredibly grateful to everyone who has shared with us their personal stories of living with Raynaud's and scleroderma. As well as continuing to raise awareness, sharing experiences and talking about all the various aspects of living with these conditions provides an essential resource that is always available when someone is looking for some information and support.
Could you share your story with us? Everyone's journey is different so whatever your experience, we would love to hear from you. Please get in touch with us if you would like some more information, and we will be very happy to help you.
Paramedic Suzie didn't know she had Raynaud's until a colleague mentioned the possibility.
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Steph has been living with Raynaud's since she was a teenager
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Sharon is newly diagnosed with Raynaud's and Scleroderma and shares her story of how it affects her everyday life.
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Teenager Amy talks about her fight with Raynaud’s
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William Bloodworth, Age 9, from Sheffield doesn't let his Raynaud's get in the way of his love of sports.
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Meet Chloe who has Raynaud's
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Read Chelsea's story of living with extreme Raynaud's.
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Claire and Lewis share the challenges of doing every-day tasks
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Share your stories of Scleroderma and Raynaud's.
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Diane's story of Secondary Raynaud's.
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Hear Lorraine's experiences of Raynaud's, and later developing Scleroderma.
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Our Community share their personal Scleroderma stories
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Deb lived with Raynaud's for many years before being diagnosed.
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Friday 25th March 2022
On the 17th March 2022 the UK’s Medicine and Health products Regulation Agency (MHRA) approved a new drug, Evusheld, for the prevention of COVID-19 infection.
Thursday 10th March 2022
Can you imagine a future where we will be able to eliminate trial and error in prescribing medications by predicting the best treatment for a person’s scleroderma before they even receive it! The winning proposal of the SRUK/ WSF Stratified Medicine of the Future Award aspires to make this a reality.
Friday 25th February 2022
Happy Raynaud's Awareness Month! In this week's article we take a closer look at some of the upcoming research focused on Raynaud's!